Amanda Knapp
Camp Sundown is a unique and specialized summer camp designed for children and adults living with a rare genetic disorder called Xeroderma Pigmentosum (XP) and other UV-sensitive conditions. XP makes individuals extremely sensitive to ultraviolet (UV) light, requiring them to avoid sunlight and other sources of UV radiation to prevent severe skin damage, burns, and an increased risk of skin cancer. Located in Craryville, New York, Camp Sundown provides a safe, supportive, and inclusive environment where campers can enjoy traditional camp activities—such as sports, arts, and outdoor adventures—all conducted after sunset or in UV-protected facilities. The camp fosters a sense of community, independence, and joy for those who often face isolation due to their condition, offering a rare opportunity to connect with others who share similar experiences.
| Characteristics | Values |
|---|---|
| Purpose | A summer camp for children with xeroderma pigmentosum (XP), a rare genetic disorder causing extreme sensitivity to UV light. |
| Location | Crugers, New York, USA. |
| Founded | 1988 by Helen Klein, whose daughter had XP. |
| Duration | Typically runs for 5 weeks during the summer. |
| Schedule | Activities are held at night or in UV-protected environments. |
| Activities | Swimming (after dark), arts and crafts, sports, music, and storytelling. |
| Staff | Volunteers, medical professionals, and counselors trained in XP care. |
| Accommodations | UV-protected cabins and facilities with blackout curtains and UV filters. |
| Funding | Relies on donations, grants, and fundraising efforts. |
| Impact | Provides a safe, inclusive environment for XP children to socialize and enjoy childhood experiences. |
| Notable Features | Nighttime-focused schedule, strict UV protection protocols, and emotional support for families. |
| Eligibility | Open to children diagnosed with XP, typically aged 5–18. |
| Global Recognition | Featured in documentaries and media for its unique mission and impact. |
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What You'll Learn
- History: Camp Sundown was founded in 1993 for children with Xeroderma Pigmentosum (XP)
- Mission: Provides a safe, sun-free environment for XP patients to enjoy outdoor activities
- Location: Situated in Craryville, New York, offering a secluded, shaded retreat for campers
- Activities: Nighttime sports, arts, and social events tailored to XP-specific needs
- Impact: Empowers XP children, fostering independence, friendships, and a sense of community
History: Camp Sundown was founded in 1993 for children with Xeroderma Pigmentosum (XP)
In 1993, a groundbreaking initiative emerged to address the unique challenges faced by children with Xeroderma Pigmentosum (XP), a rare genetic disorder that makes individuals extremely sensitive to ultraviolet (UV) light. Camp Sundown was founded as a sanctuary where these children could experience the joys of summer camp without the dangers of sunlight. This innovative concept was born out of necessity, as XP requires strict avoidance of UV rays, even during daylight hours. The camp’s creation marked a turning point for families who had previously felt isolated and limited in their recreational options. By providing a safe, controlled environment, Camp Sundown not only offered a sense of normalcy but also fostered a community of understanding and support.
The establishment of Camp Sundown was no small feat. It required meticulous planning to ensure every aspect of the camp was UV-safe. From specially designed buildings with UV-filtered windows to nighttime activities that maximized fun while minimizing risk, every detail was considered. The camp operates exclusively after sunset, allowing children to participate in traditional camp activities like sports, arts, and storytelling under the cover of darkness. This unique schedule highlights the creativity and dedication of the founders, who prioritized safety without compromising the camp experience. For children with XP, this meant more than just a week of fun—it meant a chance to connect with peers who shared their challenges, reducing feelings of isolation.
One of the most impactful aspects of Camp Sundown’s history is its role in raising awareness about XP. Before its founding, the condition was largely unknown, even among medical professionals. The camp’s existence brought XP into the spotlight, encouraging research and advocacy efforts. Over the years, it has become a symbol of resilience and innovation, demonstrating how tailored solutions can transform lives. For parents, knowing their children are in a safe, understanding environment provides immeasurable peace of mind. For the children, it’s a place where they can simply be kids, free from the constant worry of UV exposure.
Looking back, Camp Sundown’s founding in 1993 was more than just the start of a summer camp—it was the beginning of a movement. It challenged societal norms and proved that with creativity and determination, even the most complex challenges can be overcome. Today, the camp continues to thrive, serving as a beacon of hope for families affected by XP. Its history is a testament to the power of community and the importance of creating spaces where everyone, regardless of their condition, can feel included and valued. For those with XP, Camp Sundown isn’t just a camp—it’s a lifeline.
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Mission: Provides a safe, sun-free environment for XP patients to enjoy outdoor activities
For individuals with Xeroderma Pigmentosum (XP), a rare genetic disorder that makes them extremely sensitive to ultraviolet (UV) light, traditional outdoor activities can be life-threatening. Camp Sundown, a unique summer camp in upstate New York, addresses this challenge head-on by creating a safe, sun-free environment where XP patients can enjoy the outdoors without risking severe sunburns, skin cancer, or other complications. This mission is not just about protection; it’s about empowerment, allowing campers to experience the joys of nature, friendship, and adventure in a way that’s tailored to their needs.
Creating a Sun-Free Haven: The Logistics
Camp Sundown operates exclusively after sunset, with activities beginning around 8:00 PM and continuing until the early morning hours. This schedule ensures that campers are never exposed to harmful UV rays, even on cloudy days when UV radiation can still penetrate. The campgrounds are equipped with specialized UV-blocking tents, shaded pavilions, and blackout curtains in cabins to maintain a safe environment during rest periods. Additionally, all outdoor areas are monitored with UV meters to ensure zero exposure. For daytime travel, campers use tinted windows and wear full-body protective clothing, including broad-spectrum sunscreen with an SPF of at least 50, reapplied every two hours.
Activities Designed for XP Campers: Balancing Fun and Safety
The camp offers a wide range of nighttime activities that rival traditional daytime programs. Campers can enjoy stargazing with telescopes, glow-in-the-dark sports like soccer and frisbee, and nighttime nature hikes led by trained counselors. Creative arts, such as painting and music, are also popular, allowing campers to express themselves in a supportive environment. For younger campers (ages 5–12), activities are simplified and focus on sensory play, while teenagers (ages 13–18) engage in more challenging adventures like orienteering and team-building exercises. Every activity is designed to maximize enjoyment while adhering to strict safety protocols.
The Impact: More Than Just a Camp
Camp Sundown’s mission extends beyond providing a safe space; it fosters a sense of community and normalcy for XP patients, many of whom feel isolated due to their condition. Campers form lifelong friendships with peers who understand their challenges, reducing feelings of loneliness and stigma. Parents and caregivers also benefit, gaining respite and peace of mind knowing their children are in a secure environment. Studies have shown that attendees report increased self-confidence, improved social skills, and a greater willingness to engage in outdoor activities post-camp, demonstrating the long-term impact of this unique program.
Practical Tips for Families: Preparing for Camp Sundown
For families considering Camp Sundown, preparation is key. Ensure your child has a comprehensive UV protection kit, including UPF 50+ clothing, wide-brimmed hats, and UV-blocking sunglasses. Pack a reliable UV meter to monitor exposure levels, and practice nighttime routines at home to help your child adjust to the camp schedule. Encourage open communication about their condition and the importance of safety rules. Finally, connect with other XP families through support groups or online forums to share experiences and advice, making the transition to camp smoother and more exciting.
Camp Sundown’s mission to provide a safe, sun-free environment is a testament to the power of innovation and compassion. By reimagining what’s possible for XP patients, it transforms limitations into opportunities, proving that everyone deserves to experience the magic of the outdoors.
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Location: Situated in Craryville, New York, offering a secluded, shaded retreat for campers
Nestled in the heart of Craryville, New York, Camp Sundown occupies a prime location that serves as both sanctuary and adventure ground for its campers. Surrounded by dense woodlands and buffered by the natural contours of the Hudson Valley, the camp’s geography is deliberately chosen to minimize exposure to sunlight while maximizing access to nature’s calming embrace. This isn’t merely a summer camp—it’s a lifeline for children with xeroderma pigmentosum (XP), a rare genetic disorder that renders them extremely sensitive to UV light. The site’s seclusion ensures that every activity, from morning hikes to evening campfires, unfolds in the protective shade of towering trees and strategically designed structures.
For parents and caregivers, the Craryville location offers peace of mind. Situated approximately 120 miles north of New York City, it’s remote enough to shield campers from urban distractions yet accessible for those traveling from major metropolitan areas. The camp’s layout is a masterclass in adaptive design: cabins are oriented to avoid direct sunlight, outdoor activities are scheduled during the safest hours (typically before 8 a.m. and after 6 p.m.), and even the dining hall features UV-filtered windows. This meticulous planning transforms the location from a mere setting into an active participant in the camp’s mission.
Comparatively, other camps for children with special needs often struggle to balance accessibility with the need for specialized environments. Camp Sundown’s Craryville site, however, achieves this equilibrium effortlessly. The surrounding forest acts as a natural barrier against harmful rays, while the camp’s elevation and proximity to water sources (a small creek runs along the property’s edge) create a microclimate that’s cooler and shadier than surrounding areas. This isn’t just a location—it’s a carefully curated ecosystem designed to foster independence, joy, and safety.
Practical considerations abound for families planning a visit. The camp recommends arriving during late afternoon hours to avoid midday sun exposure, and all visitors are encouraged to adhere to the camp’s strict UV-protection protocols (e.g., wearing UPF 50+ clothing, using broad-spectrum sunscreen, and carrying portable shade structures). For those traveling from afar, nearby towns like Hudson and Rhinebeck offer accommodations and amenities, though the camp’s self-contained nature means most families find little reason to leave once they arrive.
Ultimately, the Craryville location isn’t just a backdrop for Camp Sundown—it’s the foundation of its transformative impact. By harnessing the natural seclusion and shade of its surroundings, the camp creates a world where children with XP can explore, connect, and thrive without fear. This isn’t merely a place; it’s a promise of freedom, carefully carved into the landscape of upstate New York.
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Activities: Nighttime sports, arts, and social events tailored to XP-specific needs
Camp Sundown, a unique summer camp designed for individuals with Xeroderma Pigmentosum (XP), a rare genetic disorder causing extreme sensitivity to ultraviolet (UV) light, thrives under the cover of darkness. Here, nighttime isn’t just a respite from the sun—it’s prime time for activity. Tailored to the specific needs of XP campers, these evening programs blend safety, creativity, and community, ensuring every moment is both meaningful and memorable.
Sports Under the Stars: Redefining Play
Nighttime sports at Camp Sundown are a masterclass in adaptation. Traditional games like soccer and basketball are reimagined with glow-in-the-dark equipment—balls, cones, and even jerseys—to ensure visibility without harsh lighting. For younger campers (ages 6–12), simplified versions of tag and relay races are introduced, emphasizing teamwork over competition. Older teens (13–18) might engage in more strategic games like capture the flag, where UV-free flashlights are used sparingly to mark boundaries. Safety is paramount: all activities are supervised by trained staff equipped with UV meters, and breaks are frequent to prevent overexertion in the cooler night air.
Artistic Expression in the Dark: A Sensory Experience
The arts at Camp Sundown transform the night into a canvas. Campers participate in activities like blacklight painting, where fluorescent paints glow under specialized lights, allowing them to create vivid, ethereal artwork. For those who prefer performance, shadow puppetry and storytelling sessions use UV-free LED lights to cast dramatic silhouettes. Music takes center stage too, with acoustic jam sessions and drum circles that rely on sound rather than sight. These activities are designed to be inclusive, accommodating varying levels of physical ability and sensory sensitivity, ensuring every camper can express themselves freely.
Social Events: Building Bonds After Dusk
Nighttime social events at Camp Sundown are crafted to foster connection without the pressure of daylight scrutiny. Campfires, a staple of traditional camps, are replaced with "starlight circles," where campers gather under UV-filtered lights to share stories, jokes, and songs. For older teens, themed dance parties use blacklights and glow accessories, creating a vibrant atmosphere without UV risks. Younger campers might enjoy pajama parties with board games and movie nights, featuring films projected onto UV-protected screens. These events are carefully timed to align with campers’ energy levels, typically starting at 8 PM and wrapping up by 10 PM for younger groups, with later hours for teens.
Practical Tips for Nighttime Engagement
To maximize the benefits of these activities, Camp Sundown employs a few key strategies. First, all equipment is rigorously tested to ensure it’s UV-free, from glow sticks to lighting fixtures. Second, activities are rotated to prevent monotony, with a mix of high-energy sports and calming arts sessions. Staff are trained to monitor campers for signs of fatigue or sensory overload, offering quiet spaces for breaks when needed. Finally, feedback from campers is actively sought to refine programs, ensuring they remain engaging and relevant year after year.
By embracing the night, Camp Sundown turns limitations into opportunities, offering XP campers a world of activity that’s as safe as it is exhilarating. These tailored programs prove that with creativity and care, even the darkest hours can shine brightly.
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Impact: Empowers XP children, fostering independence, friendships, and a sense of community
Camp Sundown, a specialized summer camp for children with Xeroderma Pigmentosum (XP), offers more than just a safe haven from the sun’s harmful rays. It provides a transformative experience that empowers XP children in ways traditional camps cannot. By creating an environment tailored to their unique needs, Camp Sundown fosters independence, nurtures friendships, and builds a strong sense of community. These children, often isolated due to their condition, find a place where they can thrive without fear of UV exposure, while gaining skills and connections that last far beyond the summer weeks.
One of the most profound impacts of Camp Sundown is its ability to cultivate independence in XP children. At home, many of these children rely heavily on caregivers to ensure they are protected from sunlight. At camp, however, they are encouraged to take charge of their own safety. For instance, counselors teach them how to apply sunscreen every two hours, wear protective clothing, and monitor UV levels using portable meters. This hands-on approach not only builds practical skills but also instills confidence. A 12-year-old camper, Sarah, shared how she now reminds her parents to reapply sunscreen during family outings—a small but significant step toward self-reliance.
Friendships formed at Camp Sundown are another cornerstone of its impact. XP is a rare condition, and many children feel isolated in their daily lives. At camp, they meet peers who understand their challenges, from the nightly routines to the limitations on outdoor activities. These shared experiences create deep bonds. For example, during a nighttime talent show, a group of campers performed a skit about their "vampire lifestyles," laughing together at the quirks of their condition. Such moments of camaraderie are rare outside of camp, making these friendships invaluable. Parents often report that their children return home with a newfound sense of belonging, eager to reconnect with friends the following summer.
The sense of community at Camp Sundown extends beyond the campers to include families, volunteers, and staff. Parents, who often feel alone in navigating XP, find support in sharing stories and advice. Volunteers, many of whom return year after year, become mentors and role models for the children. This collective understanding creates a network of support that empowers not just the campers but their entire families. For instance, a mother of an 8-year-old camper described how she gained practical tips on UV-protective gear from another parent, easing her anxiety about her child’s safety.
In conclusion, Camp Sundown’s impact on XP children is multifaceted and profound. By teaching practical skills, fostering meaningful friendships, and building a supportive community, it empowers these children to navigate their condition with confidence and joy. The camp’s unique environment transforms limitations into opportunities, proving that even in the face of rare challenges, independence, connection, and belonging are within reach. For XP children and their families, Camp Sundown is more than a summer retreat—it’s a lifeline.
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Frequently asked questions
Camp Sundown is a specialized summer camp designed for children with a rare genetic disorder called Xeroderma Pigmentosum (XP), which makes them extremely sensitive to ultraviolet (UV) light.
Camp Sundown is located in Craryville, New York, in a secluded area that provides a safe environment for children with XP to enjoy outdoor activities after sundown.
Camp Sundown offers a variety of nighttime activities, including sports, arts and crafts, music, swimming, and other recreational programs, all conducted after sunset to protect campers from UV exposure.
Camp Sundown is exclusively for children with Xeroderma Pigmentosum (XP) and other UV-sensitive conditions. It provides a unique opportunity for these children to experience the joys of summer camp in a safe environment.
Camp Sundown is a nonprofit organization that relies on donations, grants, and fundraising efforts to cover its operational costs and provide financial assistance to families who may not be able to afford the camp fees.
